HAVING conversations about dying, death and bereavement are be no means easy - but they are ever so important.
This is the message from two sisters who know first-hand the importance of having conversations about end of life and making choices matter, as they did with their mum Josephine Gunnee.
With this week marking Dying Matters Awareness Week sisters Linda Buckley, from Leigh on Sea, and Alison Thorpe, from Colchester, decided to share their experiences of why we should talk about dying.
Their mum Josephine had a positive outlook on life, grasping every opportunity, and being diagnosed with a rare cancer did not stop her from going out with friends and spending time with her family.
In 2019, Josephine shared her thoughts about dying by saying: “The doctor told me how long I might have and I thought right, I don’t want to die at home, I don’t want to die in a nursing home; I want to die at St Helena Hospice. So I just rung them up and more or less I said, can I die at your place?
“I’m 84, nearly 85, and I’d give up my life now for somebody over there [at the hospice] that’s younger, without a doubt, because I’ve had a good life. That’s not to say I don’t want to carry on having a good life but you know life ends, so let it end happily.”
St Helena Hospice supported Josephine and her family before she was admitted to the hospice for her last days, as she had wished, and where she died in January 2020.
Linda, 60, said: “It was very sad when mum left her home to go in the ambulance. We could see her face looking up at the building as if to say I won’t be coming back this time. But in another way, it was comforting, knowing now that it was mum’s wish to go to the hospice.”
Josephine had discussed her wishes with her family early on because she wanted everything to be as straightforward as it could be for them after her death.
Whilst Josephine was at home she had open and honest conversations about the stages of what would happen and what she wanted to happen with her hospice in the home clinical nurse specialist, Josh, who she shared a strong bond with.
Alison, 54, said: “Josh was brilliant. He really was our one in a million. He was honest and supportive, especially in guiding us when things deteriorated quickly, and ensuring mum’s plan was implemented. She could talk to him and tell him everything.
“Mum knew what her wishes were so putting that into a book wasn’t a problem. We did it as a family. Mum just had everything organised. She said she’d rather be in the hospice knowing that she was being looked after so the onus wasn’t on me and my sister. It was what she wanted.”
When the time came, Josephine was admitted to the hospice.
Once she had settled in, Linda and Alison knew their mum was feeling safe and looked after, so they were able to relax and enjoy the special moments shared together.
Alison added: “We overlooked the pond and mum closed her eyes and there was a lovely smile on her face. I don’t know what she was thinking and remembering but that meant an awful lot to her.”
Dying Matters Week highlights that there is no right or wrong place to die; it will be different for everyone. But it is important for families to think about it, to talk about it and to plan for it.
Josh Wilkins, St Helena Hospice clinical nurse specialist, said: “Most of what we see is a good death. We believe a good death is where a patient dies where they choose, where they feel most comfortable, surrounded by all the people and things they love.
“We want people of all ages to be in a good place when they die – physically, emotionally and with the right care in place. Talking about death won’t bring it closer – but sharing our wishes well in advance make it easier for our loved ones when we do reach the end of our lives.”
To see the full programme of Dying Matters events, visit compassionatecommunitieseast.com.
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